1978	Helen & John Perrin start a letter magazine.
1980	First Group Meeting of Parents
1981 1981 Nov 1981 Dec	Association becomes registered Charity 1st National Conference 1st Newsletter (4 pages) edited by Jan Williams
1982 1982 May	Dr Bernard Laurance becomes President. 2nd Newsletter is published, 12 pages long. One letter notes that there are 102 PW children and adults, of whom only 18 are over the age of 20. The first leaflets become available.
1983 May	Lady Butler of Saffron Walden becomes patron.
1984 May 1984 Sep	The 100 Club (now the 200 Club) starts. First PWSA Christmas cards go on sale, designed by Ann Martin, a person with PWS
1985 Jan 1985 Apr	Prof. Victor Dubowitz joins PWSA as Vice-President 6 additional Vice-Presidents join the PWSA Ralph Williams resigns as 1st Hon Chairman of the PWSA and is awarded Honorary Life Membership. He is succeeded by his father-in-law, Roger Alderman.
1987 Jan 1987 Sep	Rosemary Johnson takes over as Hon Secretary. Princess Michael of Kent becomes Royal Patron. Jan becomes an Honorary Life Member, but stays on as Newsletter Editor. Jackie Waters sends out the first of many questionnaires: this is to parents of adults.
1988 May	300 families in the PWSA. The 1st word-processed issue of the newsletter. £500,000 appeal launched.
1989 Feb	Over £60,000 is raised at the Old King Cole Ball hosted by Julien Courtauld
1990 May 1990 Sep 1990 Dec	First Handbook for Parents of Teenagers and Adults with PWS, written by Jackie Waters. First training day for professionals is held at Castle Priory, Oxfordshire. Alex Williams joins the PWSA as Development Director and Fundraiser. Roger Alderman retires as Hon Chairman. He is succeeded by Julien Courtauld.
1991 Jan 1991 May 1991 Dec	Rosemary Johnson and Jackie Waters become paid officers, working on a part-time basis. Jackie Waters takes over as Newsletter Editor. 1st Edition of PWS Pages as a Supplement. Mike Holloway takes over from Mostyn Williams (Ralph's father) as Hon Treasurer. 1st International PWS Organisation Conference in the Netherlands.
1992 Jan 1992 Sep	Newsletter makes its debut in its present day format. Handbook for Parents of Younger Children, written by Jackie Waters, is published.
1993 Oct	Virginia Bottomley, then Secretary of State for Health, visits the Annual Conference in Farnham.
1994 Mar 1994 Jun 1994 Jul	Dr Bernard Laurance retires as President. Ralph Williams retires from the Executive Committee Prof. Victor Dubowitz takes over as President. Team of Volunteer Professionals is brought together. Death of Dr Bernard Laurance.
1995 May 1995 Jun 1995 Dec	BREAK holiday for children with PWS 2nd International Conference in Norway Alex Wi1liams retires as Development Director
1996 Mar 1996 Sep	Mike Holloway retires as Hon Treasurer First PWSA(UK) Office set up Nearly 500 family & 300 professional members
1997 Oct	First AGM for teenagers and adults with PWS held at Coventry conference
2000 Jan	Narinder Sharma appointed as first Chief Executive
2001 Feb	Caroline Riley appointed as new Care and Regional Groups Worker. Kendra Mitchell becomes first staff member working specifically for people with PWS, funded by Diana Memorial Fund.
2002 April	The Association moves to new tailor-built offices, funded by the Active Community Unit. New part-time administrators appointed, seven staff now work for the Association.
2002	The Assocation celebrates its 21st Birthday with the membership taking part in a record-breaking amount of fund-raising.
2003 Feb	Two field workers appointed to support parents and carers in South East and North West England. Funded by a Home Office grant.

Our grateful thanks go to all those - far too numerous to mention - who have helped in so many ways over the years, giving of their time both willingly and energetically, to help turn the Association into the organisation it is today.

The Prader-Willi Syndrome Association (UK) - Web page last updated 2nd September 2003
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Brief History of PWSA (UK)

The Prader-Willi Syndrome Association (UK) - Web page last updated 2nd September 2003 If you have any suggestions to make about this Web site, please let us know by e-mail

The Prader-Willi Syndrome Association (UK) - Web page last updated 2nd September 2003
If you have any suggestions to make about this Web site, please let us know by e-mail