PWSA (UK) Order Form
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Price each:
Members |
Price each: Non-members |
Price each
to outside the UK |
No. |
Total Cost |
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FORMS |
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Membership Form |
FREE |
FREE |
£1.00 |
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Publications Order Form (this form) |
FREE |
FREE |
£1.00 |
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INFORMATION ABOUT PWS AND THE
PWSA (UK) (All on single A4 sheet, or three fold A4 leaflet, unless
otherwise stated) |
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What is Prader-Willi Syndrome? (brief introduction to the syndrome) |
FREE |
FREE |
£1.00 |
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So your child has Prader-Willi Syndrome... What happens now? (explains
how the PWSA (UK) can help) |
FREE |
FREE |
£1.00 |
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What is the PWSA (UK)? (guide to the services offered by
the Association and benefits of membership) |
FREE |
FREE |
£1.00 |
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Brief Synopsis (description of the main characteristics of PWS) |
FREE |
FREE |
£1.00 |
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Diagnostic Criteria for PWS |
FREE |
FREE |
£1.00 |
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The Genetics of PWS (4 sides A4) |
FREE |
FREE |
£1.00 |
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Our Way of Life (40+ pages in loose-leaf format. Information pack specifically
for people with PWS, explaining the syndrome and how to manage it in pictures
(many in colour) and words. Non-readers will need help. Suitable for those
aged about 10 and over. Special additional section for over 14 year olds.
Please state age and sex below when ordering the pack. Note: Although free if
it is to be used directly with a person with PWS, the cost is £5 to others (All
overseas orders: £8). Age...........................................
Sex.......................... |
FREE FOR
PEOPLE WITH PWS |
FREE FOR
PEOPLE WITH PWS |
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REVISED Prader-Willi
Syndrome: Practical ideas to help with Weight Control by Margaret Gellatly
SRD (44 pages A5) |
FREE |
FREE |
£3.00 |
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Behaviour Management in PWS (12 page A4 leaflet dealing with
behavioural challenges in PWS, why they occur, and hints on how to manage
them) |
FREE |
FREE |
£1.00 |
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Educating the Child with PWS (4 sides A4) |
FREE |
FREE |
£1.00 |
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Speech and language in PWS (4 sides A4) |
FREE |
FREE |
£1.00 |
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New Vision
and care of the eyes in PWS |
FREE |
FREE |
£1.00 |
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Being the brother or sister of someone with PWS (8 sides
A4) |
FREE |
FREE |
£1.00 |
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Being the grandparent of someone with PWS |
FREE |
FREE |
£1.00 |
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Hello! I have PWS (4 page information sheet to be completed by person with PWS or
parents for respite carers/teachers/youth leaders/child-minders etc.) |
FREE |
FREE |
£1.00 |
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Prader-Willi Syndrome: A handbook for parents and carers of babies
and children with PWS. By Jackie Waters |
£5.00 |
£5.00 |
£10.00 |
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Handbook for parents and carers of adults with PWS (revised
edition). (ISBN 0 9521023) by Jackie Waters (1996) (46 pages paperback.
Includes sections on medical characteristics, ethical issues and controlling
finances, dietary management, behaviour management, social life, residential
care, employment and benefits) |
£3.00 |
£4.50 |
Members
£6.00. Non-members
£8.00 |
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Prader-Willi Syndrome: Food and Health (ISBN 0 9521023 4 X) by
Margaret Gellatly (1996). (36 pages A5 paperback. How to provide a healthy diet for people
with PWS, how many calories per day are required to maintain a healthy
weight, with sample menus and weighed food lists giving calorie counted
servings) |
£1.50 |
£2.50 |
Members
£3.50 Non-members
£4.50 |
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Beyond the Veneer (ISBN 0 9521023 5 8) edited by Jackie Waters
(1997). (20 pages paperback. A guide to the essential features of
residential care and supported living for adults with PWS. For purchasers and
providers of care, as well as parents and carers. Explains why people with
PWS have very specific care needs and how these should be addressed). |
£2.50 |
£3.50 |
Members £5.00 Non-members
£6.00 |
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Home, School and Community (ISBN 0-412-45360-6) by Terrance N
James and Roy K Brown (1992). (223 pages paperback. Based on a study of families in Western
Canada, looks at the major problems and offers practical suggestions for
dealing with a range of issues concerning parents.) |
£13.95 |
£15.50 |
£17.00 |
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NEW Our
Babies: (24 page booklet in which parents of young children with PWS
describe their feelings on having a baby diagnosed with PWS, and their feelings
now. Encouraging and positive.) |
FREE |
FREE |
£3.00 |
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Item |
Price each
Members |
Price each
Non-members |
Price each
to outside the UK |
No. |
Total Cost |
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INFORMATION ABOUT PWS AND THE
PWSA (UK) (continued) |
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Management of Prader-Willi Syndrome (2nd Edition) (ISBN
0-387-94373-0) edited by Louise R Greenswag and Randall C Alexander (1995). (393 pages,
hardback. Each chapter written by a USA expert on PWS, including genetics,
medical conditions, and dietary and behavioural management. A small part of
the book is specific to the USA.) |
£25.50 |
£27.50 |
£32.00 |
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Prader-Willi Syndrome: A Practical Guide. Resource materials for
teachers by Jackie Waters (ISBN
185346614X) (88 pages) Practical help for teachers of 3-19yr olds with PWS. Cognition,
abilities, and classroom management, with a medical overview. |
£15.00 |
£15.00 |
£18.00 |
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REPORTS ON QUESTIONNAIRES AND
TRAINING DAYS |
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