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Below are some stories of real people with PWS - none of them are "Fairy Tales" with impossible achievements and happy endings. Written by parents or carers or the people themselves, they document the on-going struggle, the wins and the losses, which living with PWS is about. |
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From Birth to 19, described at some considerable length by her father. |
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Cute - but aren't they all! |
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What he had to do to achieve a Gold Duke of Edinburgh's Award. |
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His Mother's moving and frank account of a young man's fight with PWS. He died at 33, but he could be proud of the independence he achieved in his life. |
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Mrs LW Remembers the struggles with the education system to find her daughter a suitable placement. |
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Suzanne Talks to Her Class and they find out about PWS from a real expert - Suzanne herself. In her second contribution, some years later, it's swimming that grabs the spotlight. |
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A letter from Laura who is only two but has plenty to say. |
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A letter from Rebecca in her own words. |
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Esther's Progress after college.
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A letter from Kerry in her own words.
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More Stories Wanted - e-Mail them Here!